My Mony

I say My Mony because although I am not her parent I claim ownership as I have been with her and lived with them off and on for her entire life. She is the sun in any room and any one the she meets is changed by her spirit. I am worried about my Mons tonight. She will be having very serious surgery tomorrow. Currently her spine is curved and continuing to do so and will soon be crushing her vital organs. So intervention is needed. Her recovery will be long, and painful. She already lives everyday of her life in pain and so when she cries ( and sometimes screams) you know it is much worse. It has been bad lately. Her seizures are getting worse and medication is not managing them the way they had before. Many nights she has been crying and screaming all night and we can do nothing to help. If she survives this surgery and recovery, she will then be going in for hip surgery, again. Her hips are being pulled out of socket due to her spastic muscle tone. This will be the second of this surgery. After that brain surgery to attempt a procedure that will end her seizures. Watching this angel in this horrid pain is heart breaking. She is so much braver than I and I am in awe of her everyday. She has an infectious laugh. She bursts with laughter at farts and when people drop their keys or stub their toes. She is so unique and amazing. Tonight I laid with her and just basked in the spirit that surrounds her.  We had a giggle fest and cuddled as she repeatedly tried to backhand me which is one of her favorite past-times. I will never forget the time that we were in a loaded elevator and Ramona smacked a stranger in the crotch repeatedly. We did not catch her in time to stop it. Needless to say the man exited the elevator as quick as possible. She will take a large part of my heart if she leaves us. And as of late it seems that it will be, when she leaves, not if she leaves.  I fear that it might be my last giggle fest and the last backhand I receive from my Mons. But I believe that she will return to our heavenly father when she is finished on this earth. I just don't know what trials she could possibly have left to overcome. She is the most important aspect of my life and I pray for her to have the peace that she deserves. I love you chicken butt.